I didn't think I could top two attacks within 15 hours, but true to myself, I found a way to out-due myself once again. Last night, Japh camped out in the living room with me again and I was so lucky to have such a mellow little brother with me. I was able to wake him up around 1 AM and he took very good care of me during the whole attack. He also went and woke up mama and papi. When I started feeling my attack coming on, I was in complete disbelief. I thought to myself, "This can't be happening; there's no way I could have another one."
THREE ATTACKS WITHIN 20 HOURS.
Every attack makes my whole body so sore and weak, and to have them over and over again, it only made it hurt worse during each subsequent attack. Despite all of this, I surprised myself with how well I handled the attack mentally.
You never know what you're capable of doing until you're pushed to your limits. Even during the third attack, I was given strength from a place much deeper than I'm capable of reaching on my own. I know that my Heavenly Father gave me the mental and emotional strength to endure my physical trial. For even during the worst of it, I was surprised by the realization that I could not only handle three attacks back-to-back, but that I could handle more. I was pushed past what I believed to be my limit only to find the fence-line 20 yards further ahead of me.
What a beautiful gift I have been given. So many people go through life believing what they're capable of to be so much less than what it truly is. They see their field of possibilities and capabilities to be a much more harnessed and arid land than what it actually is. But there is One who sees the fertile, flowing fields within each of us. Unfortunately, we humans don't gain this sight until we reach a point in our lives where we can no longer keep going on our own power and will. We can never see this beauty until we are swept up by angels sent from Heaven to carry us to higher place, for the beauty of our fields can only fully be embraced from a bird's-eye view. We can never see the great work we're capable of doing when we're caught up in pulling the weeds or planting the seeds. Though these acts are incredibly important as they are multiplied together to create our own little wonder. I know there is a beauty within all of us that is beyond magnificence, and it is my prayer that everyone might have the blessing of the freedom that comes with a First Class Flight.
Friday, July 29, 2011
Thursday, July 28, 2011
Shake, Shake, Shake, Shake, ah Shake It (Metro Station)
Well, turns out I spoke too soon with the "opps, I did it again" title. I had another attack a little less than two hours ago that lasted an hour. It was the first attack that my little brothers had seen. I was so proud of them, they handled it so well.
I don't know why I keep having them over and over again; I keep trying to figure out what lesson it is I'm supposed to be learning from them. Maybe I'm just supposed to know that I can withstand hard times. This evening, my family went into town to run a few errands and I stayed home alone. I really needed to go to the bathroom, but after trying to sit up on the couch and falling back down, I realized crawling was my best option. I made it only three feet from the couch when I realized I was going to have an attack. I had left my phone resting on the top of the back of the couch. I tried so hard to crawl up the couch to reach it. I almost thought I wouldn't be able to. It's a testament to Heavenly Father's love for His children that I was able to reach it. I called my sister - she always has her phone on her - and by the time she answered I was already convulsing so all she heard was me trying to gasp for air. All I heard was, "Lauren?...Oh crap." And then my phone went flying with my next convulsion. There was reassurance in knowing that my family was coming.
There is such a great strength from those that love you. What a wonderful gift a family is. Family isn't just those related by blood, family is the support system we have filled with people who love us despite our weaknesses and shortcomings. I could never have made it through any of this without the support of my unique and diverse family. I gained a lot of siblings while I was in Hawaii, and I am so grateful for every member of my family. So this is a shout out to every one who has touched my life. Thank you for all you've done for me, and someday, I hope to help others the same way so many people have supported, cared for, prayed for, and loved me. Your influence reaches further than you know.
I don't know why I keep having them over and over again; I keep trying to figure out what lesson it is I'm supposed to be learning from them. Maybe I'm just supposed to know that I can withstand hard times. This evening, my family went into town to run a few errands and I stayed home alone. I really needed to go to the bathroom, but after trying to sit up on the couch and falling back down, I realized crawling was my best option. I made it only three feet from the couch when I realized I was going to have an attack. I had left my phone resting on the top of the back of the couch. I tried so hard to crawl up the couch to reach it. I almost thought I wouldn't be able to. It's a testament to Heavenly Father's love for His children that I was able to reach it. I called my sister - she always has her phone on her - and by the time she answered I was already convulsing so all she heard was me trying to gasp for air. All I heard was, "Lauren?...Oh crap." And then my phone went flying with my next convulsion. There was reassurance in knowing that my family was coming.
There is such a great strength from those that love you. What a wonderful gift a family is. Family isn't just those related by blood, family is the support system we have filled with people who love us despite our weaknesses and shortcomings. I could never have made it through any of this without the support of my unique and diverse family. I gained a lot of siblings while I was in Hawaii, and I am so grateful for every member of my family. So this is a shout out to every one who has touched my life. Thank you for all you've done for me, and someday, I hope to help others the same way so many people have supported, cared for, prayed for, and loved me. Your influence reaches further than you know.
Opps!...I Did It Again!
I had another exciting early morning. About 5 AM I had another attack. Luckily, I was able to call the house. Both my parents came down to help me. This was the first night since my last attack that Japhy didn't sleep downstairs with me. I'm beginning to think I can't be left alone, even to sleep.
This attack was pretty relentless and lasted about an hour and a half. It was light outside when my attack finally finished. This one was a little more upper body intense. My arms would convulse and my shoulders would seize up so tightly that my throat would be completely closed and I couldn't breathe. Over and over again. Between this and my legs convulsing, my mama said I looked like a fish outta water. I felt badly that they had to miss out on their sleep. Too bad I can't schedule these attacks for a more convenient time, like never.
Japhy was a saint. He made me lunch when I woke up, and helped me walk to the bathroom. He even let me pick what show I wanted to watch, and watched it with me.
This attack was just really frustrating because I was finally getting strong enough to walk around downstairs and sit up on my own without feeling like I was going to fall over. I had big goals for today, like going upstairs for the first time in over a week, showering, and even trying to clean my room a little. Instead, I get another couple of recovery days downstairs and back to weakness, soreness, and dizziness. I tried to sit up to eat and it was too much for my body. Sometimes I find my physical limitations rather inconvenient.
On the plus side, I got a couple new movies in the mail today to keep me entertained.
This attack was pretty relentless and lasted about an hour and a half. It was light outside when my attack finally finished. This one was a little more upper body intense. My arms would convulse and my shoulders would seize up so tightly that my throat would be completely closed and I couldn't breathe. Over and over again. Between this and my legs convulsing, my mama said I looked like a fish outta water. I felt badly that they had to miss out on their sleep. Too bad I can't schedule these attacks for a more convenient time, like never.
Japhy was a saint. He made me lunch when I woke up, and helped me walk to the bathroom. He even let me pick what show I wanted to watch, and watched it with me.
This attack was just really frustrating because I was finally getting strong enough to walk around downstairs and sit up on my own without feeling like I was going to fall over. I had big goals for today, like going upstairs for the first time in over a week, showering, and even trying to clean my room a little. Instead, I get another couple of recovery days downstairs and back to weakness, soreness, and dizziness. I tried to sit up to eat and it was too much for my body. Sometimes I find my physical limitations rather inconvenient.
On the plus side, I got a couple new movies in the mail today to keep me entertained.
Wednesday, July 27, 2011
Buying Sanity
This past week I've fallen even further in love with amazon. More specially, with how incredibly cheap you can find things there, not to mention their free two day shipping with prime. I've purchase some movies for the same price - or cheaper, depending where you go - than it costs to rent them. With so much time on bed rest while everyone else is at work, I've deemed this an investment in my sanity. Too bad I can't buy my physical health as well.
Right now I am in the midst of trying to get things sorted school-wise. It's a lot harder than I feel it should be, but then again, what in life isn't? I really just want to get a medical deferment, and I have the medical documentation and doctor's note - who knew you'd still need one in college? - to more than prove my qualifications for such. Unfortunately, everyone I've talked to in various offices around campus today has said that BYUH doesn't offer medical deferments and that my only option is to discontinue and reapply to return to BYUH when I'm well. There are several problems with this option. 1) I'd have to reapply several months ahead of time, so if I want to reapply for Winter semester, I'd have to discontinue and immediately turn around and reapply, HOPING that I'll be readmitted for Winter semester. Granted, they said that my admittance chances as a returning student would be higher. 2) I'd have to do that process all over again if, Heaven Forbid, I need to take two semesters off for more medical testing. 3) I would lose all of my scholarships, which are relatively substantial. If I write a letter of appeal and it's approved, I will be able to defer half of them for winter semester, and I'd only lose the other half because I discontinued and was no longer a student. If I try to take some online classes fall semester, than I'd lose all of my scholarships. Would it be cheating the system if I discontinued from BYUH and took some online classes elsewhere and just had the credits transferred once I returned? That way I could keep the scholarships and take online classes... So far, I've only spoken to student workers, and I've only spent one day trying to sort all of this out, so there's hope for a brighter answer tomorrow, or sometime in the next month. I need to do some more reading, but I don't believe that forcing me to discontinue and reapply due to medical reasons is legal according to the Americans with Disabilities Act (ADA). Good thing I know a good attorney who's passionate about my education. I'm really just hoping to get things sorted with relative ease and kindness; true to my independent self, I'd rather just figure things out on my own.
On the plus side, my movies should be here tomorrow. I'm definitely excited for something new to do. What's even better? The family cat of 10 years came back after being gone for almost a week! We all thought Zipper had become dinner for the coyotes or hawks. Even though I'm allergic, I was happy she's still alive and around. She's mostly an outdoor cat who serves as mouse-catcher, but spends nights and winters in the garage. It's been weird going out there and not being perpetually almost-tripped by a cat zipping between my feet. I doubt I'll be missing that in a day or two...but we all sacrifice things for those we love.
Right now I am in the midst of trying to get things sorted school-wise. It's a lot harder than I feel it should be, but then again, what in life isn't? I really just want to get a medical deferment, and I have the medical documentation and doctor's note - who knew you'd still need one in college? - to more than prove my qualifications for such. Unfortunately, everyone I've talked to in various offices around campus today has said that BYUH doesn't offer medical deferments and that my only option is to discontinue and reapply to return to BYUH when I'm well. There are several problems with this option. 1) I'd have to reapply several months ahead of time, so if I want to reapply for Winter semester, I'd have to discontinue and immediately turn around and reapply, HOPING that I'll be readmitted for Winter semester. Granted, they said that my admittance chances as a returning student would be higher. 2) I'd have to do that process all over again if, Heaven Forbid, I need to take two semesters off for more medical testing. 3) I would lose all of my scholarships, which are relatively substantial. If I write a letter of appeal and it's approved, I will be able to defer half of them for winter semester, and I'd only lose the other half because I discontinued and was no longer a student. If I try to take some online classes fall semester, than I'd lose all of my scholarships. Would it be cheating the system if I discontinued from BYUH and took some online classes elsewhere and just had the credits transferred once I returned? That way I could keep the scholarships and take online classes... So far, I've only spoken to student workers, and I've only spent one day trying to sort all of this out, so there's hope for a brighter answer tomorrow, or sometime in the next month. I need to do some more reading, but I don't believe that forcing me to discontinue and reapply due to medical reasons is legal according to the Americans with Disabilities Act (ADA). Good thing I know a good attorney who's passionate about my education. I'm really just hoping to get things sorted with relative ease and kindness; true to my independent self, I'd rather just figure things out on my own.
On the plus side, my movies should be here tomorrow. I'm definitely excited for something new to do. What's even better? The family cat of 10 years came back after being gone for almost a week! We all thought Zipper had become dinner for the coyotes or hawks. Even though I'm allergic, I was happy she's still alive and around. She's mostly an outdoor cat who serves as mouse-catcher, but spends nights and winters in the garage. It's been weird going out there and not being perpetually almost-tripped by a cat zipping between my feet. I doubt I'll be missing that in a day or two...but we all sacrifice things for those we love.
Tuesday, July 26, 2011
Moving Forward
Today I went back to the doctor's office to get some lab work done. It took five "fishing expeditions" in both forearms and hands before the nurse was able to get a vein to cooperate. I'm pretty used to this scenario anytime blood work is needed and I like to think of my bruises as really cool battle wounds I can compare to my little brothers'. (Which I promptly did this evening, and would have won if Japhy hadn't have run into something in the dark.) While the nurse kept becoming frustrated with her unsuccessful attempts, I was cheering her on and making jokes about it. Though I wish I would have been given bigger veins with all of the medical testing this life apparently has in store for me, I'm incredibly grateful blood and needles don't make me woozy. Inbetween attempts three and four, my nurse asked me where I fit in in my family. I told her I was the middle child. She replied, "That doesn't surprise me." Being the curious little cat I am, I asked her why. She said she could tell I was the middle child because I was so laid back and easy going while she, the oldest child, was stressing out.
To anyone hearing this story who's spent any amount of the first 17 years of my life with me, they would say, "I don't know who that nurse was talking about, but it certainly wasn't the Lauren I know." And they'd be right. I spent most of my life being the poster child for the over-achieving, type-A+ personality. Having that personality gave me a Hulk-like drive to always do better, be better, but it came at a hefty cost. Perfectionism is all about doing and being the best, not your best and it can lead to a life filled with stress, unrealistic self-expectations, and inevitably, feelings of inadequacy. I come by it honestly with two high-stress perfectionistic parents. Somewhere about middle school, I realized that that's not the kind of life I want to lead and I prayed everyday from then on for help to become more laid back and easy-going. It came in steps so small they could only possibly be construed as embryo steps, because even calling what little progress I made a baby step would be an exaggeration. That is, until I developed my health condition. What a catalyst for growth and change my physical trial has been in my life. I'm hoping to find some sort of middle ground between the two lifestyles. A place where I can keep the drive, will, and tenacious, hard working side that opened the door for so many wonderful opportunities in my life, and the relaxed, easy-going nature that allows life to truly be enjoyed.
This trial has forced me to learn how to let go of not only life circumstances out of my control, but also how to let go of a fast-paced, do-everything lifestyle. When you live 14 miles out of town and your car breaks down, you learn how to walk. As you walk, you're able to see all of the beautiful scenery that flew past you when you drove, and you get to stop and meet all of your wonderful neighbors who are walking as well. And when you do this, you realize all of the little blessings and moments of happiness you missed out on while you drove into town everyday by yourself, preoccupied with your mountain of a to-do list for the day. This trial has taught me how to live without the things I felt I couldn't. Life will go on. Often times, I feel like Mario on Mario Brothers when the screen just keeps pushing him to go forward. There's no sitting still, there's no going back. With time, there's only forward. So why not move with it?
To anyone hearing this story who's spent any amount of the first 17 years of my life with me, they would say, "I don't know who that nurse was talking about, but it certainly wasn't the Lauren I know." And they'd be right. I spent most of my life being the poster child for the over-achieving, type-A+ personality. Having that personality gave me a Hulk-like drive to always do better, be better, but it came at a hefty cost. Perfectionism is all about doing and being the best, not your best and it can lead to a life filled with stress, unrealistic self-expectations, and inevitably, feelings of inadequacy. I come by it honestly with two high-stress perfectionistic parents. Somewhere about middle school, I realized that that's not the kind of life I want to lead and I prayed everyday from then on for help to become more laid back and easy-going. It came in steps so small they could only possibly be construed as embryo steps, because even calling what little progress I made a baby step would be an exaggeration. That is, until I developed my health condition. What a catalyst for growth and change my physical trial has been in my life. I'm hoping to find some sort of middle ground between the two lifestyles. A place where I can keep the drive, will, and tenacious, hard working side that opened the door for so many wonderful opportunities in my life, and the relaxed, easy-going nature that allows life to truly be enjoyed.
This trial has forced me to learn how to let go of not only life circumstances out of my control, but also how to let go of a fast-paced, do-everything lifestyle. When you live 14 miles out of town and your car breaks down, you learn how to walk. As you walk, you're able to see all of the beautiful scenery that flew past you when you drove, and you get to stop and meet all of your wonderful neighbors who are walking as well. And when you do this, you realize all of the little blessings and moments of happiness you missed out on while you drove into town everyday by yourself, preoccupied with your mountain of a to-do list for the day. This trial has taught me how to live without the things I felt I couldn't. Life will go on. Often times, I feel like Mario on Mario Brothers when the screen just keeps pushing him to go forward. There's no sitting still, there's no going back. With time, there's only forward. So why not move with it?
Monday, July 25, 2011
Three Strikes, You're Out
It's official. Today my doctor said I cannot go to college this semester - any college. I can't go back to school until I get medical clearance and I can't get medical clearance until the doctors figure out what I even have. I think I'm still processing all of this and it will be hardest to deal with once everyone goes back to school and I'm not there. I can't think further than today, because when I do, I become completely and utterly overwhelmed by the long, hard journey I have ahead of me. One doctor thinks I have seizures, another, POTS, and many more who have shrugged their shoulders and said, "Sorry, I don't know how to help you." Being passed from one specialist to another, I feel like the little birdie in the children's book, Are You My Mother? Are YOU my doctor?
I just don't even know what to think or do right now. I was raised in a very education-focused family and all I've ever wanted since preschool was to go to college. Now, because of a health condition completely out of my control, my dreams have been put on hold. What do I do now? How am I supposed to feel about all of this? Throughout all of this physical trial, I've felt every emotion there is to feel about it. Frustration, resentment, sorrow, mourning, gratitude. Right now I'm just in shock, like when I was told family members have passed away. In a way, I am mourning the loss of the life I had planned, the ability to live out my greatest desire the way I want to, and the "death" of my physical abilities. I know that I'll get better, in time, and that I will be able to continue my education - nothing could stop me indefinitely - but right now I just need to push the "pause" button until I get my health restored.
This just makes me all the more excited to go back to BYUH, because I know that when I do, it will be all the sweeter after everything I had to go through in order to make it back there. Plus, it will be nice to be able to go to college (and Hawaii) when I'll be well enough to enjoy it. I have to keep focusing on what I have to look forward to at the end of this very long tunnel. The sun will never feel so brilliant. Just like how focusing on the eternal perspective is a motivation to live a higher standard of life and to endure the hard times. It makes it easier knowing there's something so incredibly tremendous waiting on the other side of the storm cloud. Sometimes the grass really is greener on the other side.
I just don't even know what to think or do right now. I was raised in a very education-focused family and all I've ever wanted since preschool was to go to college. Now, because of a health condition completely out of my control, my dreams have been put on hold. What do I do now? How am I supposed to feel about all of this? Throughout all of this physical trial, I've felt every emotion there is to feel about it. Frustration, resentment, sorrow, mourning, gratitude. Right now I'm just in shock, like when I was told family members have passed away. In a way, I am mourning the loss of the life I had planned, the ability to live out my greatest desire the way I want to, and the "death" of my physical abilities. I know that I'll get better, in time, and that I will be able to continue my education - nothing could stop me indefinitely - but right now I just need to push the "pause" button until I get my health restored.
This just makes me all the more excited to go back to BYUH, because I know that when I do, it will be all the sweeter after everything I had to go through in order to make it back there. Plus, it will be nice to be able to go to college (and Hawaii) when I'll be well enough to enjoy it. I have to keep focusing on what I have to look forward to at the end of this very long tunnel. The sun will never feel so brilliant. Just like how focusing on the eternal perspective is a motivation to live a higher standard of life and to endure the hard times. It makes it easier knowing there's something so incredibly tremendous waiting on the other side of the storm cloud. Sometimes the grass really is greener on the other side.
Sunday, July 24, 2011
Can't Buy Me Love
I actually ended up having another attack last night, making that two in less than 24 hours. Again, I was downstairs by myself (I couldn't make it upstairs to my room so I was sleeping on the couch) but I was blessed with enough warning to be able to get to the floor and use my cell phone to call the house. I think Erica has taken a liking to my periodic paralysis as she always has a fun time using me as her ventriloquist doll during these attacks. Like any big sibling, she pulled out the, "why are you hitting yourself" routine, as well as a few others. She seems to have been born with a magical power because no matter what she's ever done to me that would potentially make me mad at her, it's impossible for me to feel that way. Instead, I end up laughing and wondering how she does what she does. She's amazing.
After this attack, I woke up, turned to my parents and said, "So when are we booking my flight to Hawaii?" Though I have made all of the arrangements to go back, my parents have made me wait to book my flight because of their hesitancy with my health. Hopefully the testing done in the next month will prove to be helpful in resolving this issue.
I want to keep everyone updated on my health, but I feel as though the last few entries have been real downers, so I'm going to also write about a few of the ways that my siblings have benefited from my health. My mother has a very strict rule of no eating on the carpet, but since I can't always make it to the table, I have the exception. To we kids, mama's blessing to eat on the carpet is like being able to drink from the Holy Grail. I have a little table next to the couch to keep some snacks and water on and Noah, my 13 year-old little rebellious brother, has decided to take full advantage of it. He keeps putting snacks on it so it looks like they're mine, and then eating them all. This afternoon I woke up to find a big bag of reece's pieces empty beside me.
Japhy, my 10 year-old brother, has been a saint. He helps me walk to the bathroom, bring me food and water, and comes and talks to me. He's my little angel. He's never seen one of my attacks, so last night, before all the excitement, I showed him a video mama shot of me having an attack in June. I talked to him about it, and he told me it was scary to watch. Sometimes I think it's harder for those around me to watch me go through what I do than it is to actually go through it, especially for my mama. I know she just wants to make everything all better, but in this instance, there's nothing she or anyone else can do.
Humans don't like to feel helpless or powerless, but in doing so, it allows us to turn to a Higher Power. Realizing the need for the help of a loving, merciful God, takes a lot of humility, but brings Eternal Strength. Just before I had my attack last night, I was reading The Living Christ, and I was enveloped with the tender love of a Heavenly Father. I was able to keep that peace all throughout my attack. I know that I will never go through an attack alone. Even though my human eyes cannot see the angels Heavenly Father sends to watch over me, I know they're there. I know that God lives and that He sent His Son, Jesus Christ, to live and die for us, that we might live again. His love extends beyond any barrier and will never diminish. My faith gives me the strength to make it through these painful, scary attacks with calm. I know that through the Atonement, Crucifixion, and Resurrection of Christ, we have the power to do and overcome ALL things. I feel empowered through my trial. I think, "If I can do this, there isn't anything I can't do." While this trial has proven to be one of the hardest things I've ever had to go through, it's given me so much more than it has taken. I know that it has and will make me a person of greater strength, patience, faith, understanding, and love. How can you put a price on that?
After this attack, I woke up, turned to my parents and said, "So when are we booking my flight to Hawaii?" Though I have made all of the arrangements to go back, my parents have made me wait to book my flight because of their hesitancy with my health. Hopefully the testing done in the next month will prove to be helpful in resolving this issue.
I want to keep everyone updated on my health, but I feel as though the last few entries have been real downers, so I'm going to also write about a few of the ways that my siblings have benefited from my health. My mother has a very strict rule of no eating on the carpet, but since I can't always make it to the table, I have the exception. To we kids, mama's blessing to eat on the carpet is like being able to drink from the Holy Grail. I have a little table next to the couch to keep some snacks and water on and Noah, my 13 year-old little rebellious brother, has decided to take full advantage of it. He keeps putting snacks on it so it looks like they're mine, and then eating them all. This afternoon I woke up to find a big bag of reece's pieces empty beside me.
Japhy, my 10 year-old brother, has been a saint. He helps me walk to the bathroom, bring me food and water, and comes and talks to me. He's my little angel. He's never seen one of my attacks, so last night, before all the excitement, I showed him a video mama shot of me having an attack in June. I talked to him about it, and he told me it was scary to watch. Sometimes I think it's harder for those around me to watch me go through what I do than it is to actually go through it, especially for my mama. I know she just wants to make everything all better, but in this instance, there's nothing she or anyone else can do.
Humans don't like to feel helpless or powerless, but in doing so, it allows us to turn to a Higher Power. Realizing the need for the help of a loving, merciful God, takes a lot of humility, but brings Eternal Strength. Just before I had my attack last night, I was reading The Living Christ, and I was enveloped with the tender love of a Heavenly Father. I was able to keep that peace all throughout my attack. I know that I will never go through an attack alone. Even though my human eyes cannot see the angels Heavenly Father sends to watch over me, I know they're there. I know that God lives and that He sent His Son, Jesus Christ, to live and die for us, that we might live again. His love extends beyond any barrier and will never diminish. My faith gives me the strength to make it through these painful, scary attacks with calm. I know that through the Atonement, Crucifixion, and Resurrection of Christ, we have the power to do and overcome ALL things. I feel empowered through my trial. I think, "If I can do this, there isn't anything I can't do." While this trial has proven to be one of the hardest things I've ever had to go through, it's given me so much more than it has taken. I know that it has and will make me a person of greater strength, patience, faith, understanding, and love. How can you put a price on that?
Saturday, July 23, 2011
Chuck Norris Ain't Got Nothin on Me
For the past week I've been on bed rest working up the strength to be able to sit up on my own. For whatever reason, sometimes I have "good days" and sometimes I have "bad days" and sometimes, I have really, really bad weeks. Finally, on Friday (yesterday) I felt well enough to try to do a few things. Let me tell you, nothing feels better than a getting cleaned up after being stuck in bed for a week. My family was going to go to DQ for dinner and I was able to sit up the whole time we were there. I felt like Super Woman. When I was about to get ready for bed, I started feeling waves of very sudden, overwhelming, lightheadedness, weakness, shortness of breath, and my heart going crazy that lasted anywhere from 30 seconds to 5 minutes. After three or four of these "waves" I decided to lay on my floor with my feet up the wall, to try and help get the blood to flow back to my heart and brain. The rest of the night my heart rate and blood pressure kept riding the roller coaster, causing these "waves" to continue. I finally gave up on the idea of sleep and made it downstairs to the couch where I could distract myself with some tv. Things only got worse through the hours of the night and eventually my legs started twitching as well. At about 7 this morning, as I was sitting on the couch, I began to have another attack, but this one was different for several reasons. For one, I was sitting. Two, my eyes were open and I could see - that was really weird. I could see but I couldn't move as my body gradually began convulsing more frequently and intensely. I've always wondered what it would be like to have an attack all by myself. This morning I got my answer. I kept trying to call for help but as much as I screamed in my head, I couldn't make my body make any sound. I just kept pleaing that someone would wake up and come downstairs. After a little over half an hour, my mama did.
I firmly believe that things happen for a reason. I know that I needed to have this attack today to learn the incredible and dramatic difference having someone there makes. I needed to learn and to feel the comfort, peace, and reassurance that emanates from the pure love of those who serve me. When I was alone, I was scared. Partly, because just as the muscles in the rest of my body convulsed, so did the muscles in my throat and there were periods of time I couldn't breath at all, and others where I couldn't swallow and would choke and suffocate on my saliva as everyone else was soundly asleep above me. Shortly after my mom found me, my dad and sister joined me as well. The most beneficial thing anyone can do while I go through an attack is to talk to me and distract my mind from what my body's doing. Erica and papi each grabbed one of my hands and put on a puppet show while my body was flopping around like a fish. While their British accents left much to be desired, I have never felt more lighthearted during an attack before.
Heavenly Father, being the ultimate multi-tasker, managed to teach me multiple lessons all within one attack. One, be careful what you wish for. I always thought I'd be able to handle having an attack on my own and a little part of me wanted the opportunity to prove to myself and the world (mostly to my parents and family who said I couldn't go places or do things for fear of this situation) that I can take care of myself, even during an attack. Boy, was I brought to my knees on that one. Two, the people who serve me during these attacks have a genuine Christlike Love that fills them and me when they embody charity. Three, I am worthy and deserving of receiving this love, over and over again. Four, there is no limit to God's Love.
Even though my body feels so incredibly exhausted and weak after everything it's been through this week, I feel great. My happiness is not dependent upon my physical state because it's not the literal body that is the source of happiness and joy. (Thank goodness!) I believe Doctrine and Covenants 101:37 says it best, "Therefore, care not for the body, neither the life of the body; but care for the soul, and for the life of the soul."
I firmly believe that things happen for a reason. I know that I needed to have this attack today to learn the incredible and dramatic difference having someone there makes. I needed to learn and to feel the comfort, peace, and reassurance that emanates from the pure love of those who serve me. When I was alone, I was scared. Partly, because just as the muscles in the rest of my body convulsed, so did the muscles in my throat and there were periods of time I couldn't breath at all, and others where I couldn't swallow and would choke and suffocate on my saliva as everyone else was soundly asleep above me. Shortly after my mom found me, my dad and sister joined me as well. The most beneficial thing anyone can do while I go through an attack is to talk to me and distract my mind from what my body's doing. Erica and papi each grabbed one of my hands and put on a puppet show while my body was flopping around like a fish. While their British accents left much to be desired, I have never felt more lighthearted during an attack before.
Heavenly Father, being the ultimate multi-tasker, managed to teach me multiple lessons all within one attack. One, be careful what you wish for. I always thought I'd be able to handle having an attack on my own and a little part of me wanted the opportunity to prove to myself and the world (mostly to my parents and family who said I couldn't go places or do things for fear of this situation) that I can take care of myself, even during an attack. Boy, was I brought to my knees on that one. Two, the people who serve me during these attacks have a genuine Christlike Love that fills them and me when they embody charity. Three, I am worthy and deserving of receiving this love, over and over again. Four, there is no limit to God's Love.
Even though my body feels so incredibly exhausted and weak after everything it's been through this week, I feel great. My happiness is not dependent upon my physical state because it's not the literal body that is the source of happiness and joy. (Thank goodness!) I believe Doctrine and Covenants 101:37 says it best, "Therefore, care not for the body, neither the life of the body; but care for the soul, and for the life of the soul."
Friday, July 22, 2011
Don't Look Under the Bed
Nighttime's always the worst, which, as a night owl, is rather inconvenient. When the sun sets, thoughts of my health and how it impacts my future rise. Everyone in my life is telling me NOT to go to BYUH. I know that heat is bad for my health, but over the past year I have not only developed a love for Hawaii and BYUH, but for the people who live there and the wonderful Aloha Spirit they carry with them. It's incredibly difficult to have a physical condition that restricts and rebukes freedom and control over my body and my daily life. At times the sense of helplessness and powerlessness that comes with not being able to take care of my most basic needs can be not only frustrating, but very demoralizing as well.
I have always been a very determined and tenacious person. I thrive when faced with challenges and have never met an obstacle I could not overcome through my sheer will and hard work. But maybe those aren't the right tools I need to be using right now. Maybe that's like trying to hit a nail with a rubber spatula. There comes a time when you have to realize, that's not working and it's time to reevaluate. I LOVE BYUH. I love the people, I love the diversity, I love the intimacy, I love the environment, and I love the unique academic programs they have there. It's a small, flat campus, which is perfect for someone who can't walk long distances or up hills. Buuuut, it's hot and a long ways away from family and specialists, who can take care of me. I want so badly to stay at BYUH, but at what cost? What's the point of going to paradise if I have to spend most of my time inside air-conditioned buildings or wearing a cooling vest that looks like a life jacket? Then again, how is it any better to sacrifice what I love because it's the "hard" choice?
There's a very rational and sensible rebuttal everyone brings up in response to my desire to go to BYUH that always has the power to make my stomach do the loop-d-loop. They say it's not reasonable or fair to rely on others I may not even know yet to take care of me during and after an attack. I've always been very stubbornly independent since childhood and insisted on doing everything "all by myself". Being dependent for my most basic needs, like food, water, and helping me get to and from the bathroom when I am too weak to walk or sit up on my own, has proven to be the most difficult pill I have ever had to swallow. While it's taught me a lot about humility, compassion, and service, it's also been a source of great torment and guilt. I see it as: people did not go to BYUH to take care of me and my needs, they went to have their own life. I am nobody's responsibility, save it be my family and doctors. Even though the Lord has blessed me with people who have been incredibly charitable, compassionate, and understanding of my needs, I have not been. I know that the people who have helped me have done so voluntarily and to my amazement, have even thanked me for the opportunity to serve me, but I still feel guilty that people have to do so much for me and that I am unable to give equal amounts of labor and service to them. Is it really fair or right to go back to college - any college - knowing that at some point someone is going to have to take care of me? Am I being selfish and greedy in "not letting my physical ailment stop me from living my life"? Or am I putting my faith and trust in the Lord to protect and provide for me?
My family especially has really been pushing for me to either transfer to a school near them and/or specialists on the mainland, or to even take a semester off to focus on finding answers to questions I've been asking about my health for the last three years. I understand that they're worried and want to take care of me, but I feel like if I do either of those options, if I give up my dream school and future, then I'm letting my ailment win. From the very beginning of all of this I have been determined that I will NOT let my physical limitations limit me in any other area of my life. Having such daily limitations and lack of control over my body has only made me desire control over other areas of my life so much more. Sometimes I look at the idea of being able to be physically active again or even just being well enough to be able to live off campus, the same way Gollum views The Ring. It's hard not to become short sighted on "my precious" and to keep an eternal perspective of gratitude and understanding on the matter. It's a daily battle that's often fought hour by hour, minute by minute.
So what do I do? I have gone back and forth on the matter since April and have yet to surely know what the right answer is. I have prayed earnestly and though I cannot fast, I have done everything within my power to be spiritually open to an answer. Apparently, I just need to wrestle with this a little bit longer, or maybe it's a decision I'm supposed to make on my own. Either way, any perspectives and advice anyone out there may have would be greatly appreciated. Mahalo.
I have always been a very determined and tenacious person. I thrive when faced with challenges and have never met an obstacle I could not overcome through my sheer will and hard work. But maybe those aren't the right tools I need to be using right now. Maybe that's like trying to hit a nail with a rubber spatula. There comes a time when you have to realize, that's not working and it's time to reevaluate. I LOVE BYUH. I love the people, I love the diversity, I love the intimacy, I love the environment, and I love the unique academic programs they have there. It's a small, flat campus, which is perfect for someone who can't walk long distances or up hills. Buuuut, it's hot and a long ways away from family and specialists, who can take care of me. I want so badly to stay at BYUH, but at what cost? What's the point of going to paradise if I have to spend most of my time inside air-conditioned buildings or wearing a cooling vest that looks like a life jacket? Then again, how is it any better to sacrifice what I love because it's the "hard" choice?
There's a very rational and sensible rebuttal everyone brings up in response to my desire to go to BYUH that always has the power to make my stomach do the loop-d-loop. They say it's not reasonable or fair to rely on others I may not even know yet to take care of me during and after an attack. I've always been very stubbornly independent since childhood and insisted on doing everything "all by myself". Being dependent for my most basic needs, like food, water, and helping me get to and from the bathroom when I am too weak to walk or sit up on my own, has proven to be the most difficult pill I have ever had to swallow. While it's taught me a lot about humility, compassion, and service, it's also been a source of great torment and guilt. I see it as: people did not go to BYUH to take care of me and my needs, they went to have their own life. I am nobody's responsibility, save it be my family and doctors. Even though the Lord has blessed me with people who have been incredibly charitable, compassionate, and understanding of my needs, I have not been. I know that the people who have helped me have done so voluntarily and to my amazement, have even thanked me for the opportunity to serve me, but I still feel guilty that people have to do so much for me and that I am unable to give equal amounts of labor and service to them. Is it really fair or right to go back to college - any college - knowing that at some point someone is going to have to take care of me? Am I being selfish and greedy in "not letting my physical ailment stop me from living my life"? Or am I putting my faith and trust in the Lord to protect and provide for me?
My family especially has really been pushing for me to either transfer to a school near them and/or specialists on the mainland, or to even take a semester off to focus on finding answers to questions I've been asking about my health for the last three years. I understand that they're worried and want to take care of me, but I feel like if I do either of those options, if I give up my dream school and future, then I'm letting my ailment win. From the very beginning of all of this I have been determined that I will NOT let my physical limitations limit me in any other area of my life. Having such daily limitations and lack of control over my body has only made me desire control over other areas of my life so much more. Sometimes I look at the idea of being able to be physically active again or even just being well enough to be able to live off campus, the same way Gollum views The Ring. It's hard not to become short sighted on "my precious" and to keep an eternal perspective of gratitude and understanding on the matter. It's a daily battle that's often fought hour by hour, minute by minute.
So what do I do? I have gone back and forth on the matter since April and have yet to surely know what the right answer is. I have prayed earnestly and though I cannot fast, I have done everything within my power to be spiritually open to an answer. Apparently, I just need to wrestle with this a little bit longer, or maybe it's a decision I'm supposed to make on my own. Either way, any perspectives and advice anyone out there may have would be greatly appreciated. Mahalo.
Thursday, July 21, 2011
The Mighty Empowerment of Vulnerability
My appointment at OHSU went very well. I have never had a doctor more patient and kind than my neurologist, Dr. Smith. After a three hour consult, he believes my health is one of three things. 1) I have POTS that is resistant to pharmaceutical treatments. 2) My POTS is triggering non-epileptic seizures. 3) I have partial-complex epileptic seizures in the autonomic center of my brain. The third is the least likely, but inorder to rule out epilepsy (because its treatment is very different than POTS) I will go back to OHSU in Portland on August 29th for a week-long video-EEG test. I'll be admitted as a patient and will be hooked up to EEG monitoring (25 leads out of my head) in a room that has a video camera. The doctors will do everything they possibly can to induce an attack so they can capture it inside and out of my body. Please join me in prayer that I will have an attack quickly.
I'm learning through my struggles that in order to see my trials and physical limitations as strengths, I need to accept and embrace them. Embracing vulnerability is MUCH easier said than done, that is why I have decided to make my blog public and to start writing more about how my physical trial is affecting me in all of the other areas of my life, not just physically. This is something that terrifies me but I've learned through many different trials that what is requisite to overcome obstacles is usually the hardest thing that I could be asked to do. For me, that usually involves expressing my real emotions. I feel like, in life, that I am responsible for helping to uplift all of those around me. I see that to mean that I can only talk about positive things and emotions and when I express my fears and frustrations that I'm only "dragging someone else down emotionally". I am wrong. There is a mighty power in the humility it takes to express vulnerability. To completely and utterly open oneself up to another. It requires faith and an understanding of who one is as a child of God in order to overcome the fear and uncertainty all mankind faces of rejection and inadequacy. When I think of the stories and people that inspire me the most, it's not the "happily ever afters" that empower me to do hard things. Hopefully opening up my blog will be a means to empowering others, or maybe just myself.
I'm learning through my struggles that in order to see my trials and physical limitations as strengths, I need to accept and embrace them. Embracing vulnerability is MUCH easier said than done, that is why I have decided to make my blog public and to start writing more about how my physical trial is affecting me in all of the other areas of my life, not just physically. This is something that terrifies me but I've learned through many different trials that what is requisite to overcome obstacles is usually the hardest thing that I could be asked to do. For me, that usually involves expressing my real emotions. I feel like, in life, that I am responsible for helping to uplift all of those around me. I see that to mean that I can only talk about positive things and emotions and when I express my fears and frustrations that I'm only "dragging someone else down emotionally". I am wrong. There is a mighty power in the humility it takes to express vulnerability. To completely and utterly open oneself up to another. It requires faith and an understanding of who one is as a child of God in order to overcome the fear and uncertainty all mankind faces of rejection and inadequacy. When I think of the stories and people that inspire me the most, it's not the "happily ever afters" that empower me to do hard things. Hopefully opening up my blog will be a means to empowering others, or maybe just myself.
Subscribe to:
Comments (Atom)